I’m a mother of two sons, a seven year-old and a three year-old. My eldest son has classic autism.
Much of my blog is about my parenting experiences with my seven year-old, who has had his diagnosis since he was three, but has shown signs of his autism well before then. I also blog about wider autism issues and a variety of autism view-points.
I have a law degree with honours, and a philosophy degree with honours. I’ve been a law lecturer and tutor, and a philosophy tutor. I draw on those backgrounds at time in my posts.
In 2010 I was part of a panel discussing autism with Lindsey Dawson, on Triangle TV / Stratos, in New Zealand. My blog was also discussed by Ele Ludemann of Homepaddock, on Radio New Zealand (February 2011).
I aim for my blog to be enjoyable and informative, as well as eye-opening for those unfamiliar with autism. It will sometimes be depressing, sometimes uplifting, but hopefully always interesting. Much like autism.
Welcome to my blog!
Picture of my family, by Clara
Hi there, would you be interested in being part of a TV programme that I produce for Triangle TV? if you are in Auckland that is!
Please contact me for more info – either email or phone 09 376 5030.
Kind regards,
Deb.
Sounds interesting! I will email you today, thanks for your interest
You are an absolute inspiration and I hope your blog helps get your message out to all the parents and family struggling with similar battles. What you’ve achieved despite the odds is truly inspiring. On top of everything else, you’re also a superb writer! Keep up the amazing work. I look forward to reading your blog regularly.
That is so sweet of you Anna, I really appreciate it xxx
I just discovered your blog via the latest Down Under Feminist Carnival and I love your writing and I was wondering if you are ok with me putting you on my Feminist Motherhood blogroll at my site.. or do you not feel comfortable with that tag?
That would be fine blue milk, I’d be honoured to be added! Thanks for the compliment
hi! I really want to add you to my RSS reader… but you either don’t have a feed or I can’t find it. Can you point me in the right direction? (or possibly add one
)
Sorry about that over-sight! Added now, to the main page, about half-way down the side-bar
Hey, thanks for your kind comment about insidevaccines! Much appreciated.
And thank you back, for creating such an awesome resource!
Hi, I work with Alleviate Autism and wanted to let you know we are great fans of your work. Could you please e-mail me? Anne Burnett wants to recommend your site in her blog, and would like to get your approval and clarification on a few minor details before doing so.
Thank you, and that sounds great. I will email you today
Hi, I just wanted to let you know that I think your blog is awesome
I work for Idea Services and have been working very closely with a couple of boys with autism for a few years now. It’s really great to hear your perspective on everything, because these are emotions and experiences that don’t always come out freely when I’m interacting with the parents! Keep up the great work!
Thank you for that Laura! And it’s wonderful that you’re helping and supporting those boys and their families, good on you
A comment of yours was the jumping-point for today’s post. I’d like to link it back to your blog, with your permission. Please e-mail me at Mommy@starkravingmadmommy.com
That’s absolutely fine (and I’ve emailed you to confirm that too)
Wow! I googled ‘autism bloggers’ in an attempt to help my mom-Lynette Louise- spread the word about her new book MIRACLES ARE MADE: A Real Life Guide to Autism. When I got to your sight I was immediately sucked in. It’s beautiful and your writing is conversational and comfortable. Being the oldest of eight, with four autistic brothers (only one retains his label and remains dependent) I can only imagine what a resource such as yours would have meant for my family! Especially mom who raised us on her own. I would love to send you a copy of my moms book if you are interested. She is now a global autism expert who offers neurofeedback, play therapy and family dynamics counseling effectively guiding parents confidently into the role of expert in their families healing. Shoot me an email with your address and I will send it right away.
Thank you for speaking so invitingly on the subject of Autism. It generates not only awareness but much needed autism answers!
Tsara
Hi Tsara,
Thank you so much for those encouraging and kind words! It really does mean a lot.
And yes I would be very grateful to receive a copy of your mom’s book, it sounds like a compelling read!
I’ll send you an email today
Hi there,
are we able to follow you on fb or twitter?
Thanks.
Hi Nic.
I’ve just set up a Facebook page : Autism and Oughtisms Facebook Page.
I’ll look into the Twitter idea too.
Thanks for asking!
Thank you!
You’ll find twitter will greatly increase traffic to your blog, look into the twitter info – how to compress url’s (eg with bit.ly), using hashtags such as #asd #autism #asperger #disability #TCK #specialneeds # specialed … will help you come up in searches & link you with like-minded ppl!
All the best!
Hi again Nic.
I finally gave in and joined Twitter, though I’m struggling to figure out how to use it. I’ll give it a go for a few days and see what it’s like anyway.
For what it’s worth, my username is AutismOughtism (I’m not even sure how to share my name so people can find me..?)
Here’s the Twitter link: http://twitter.com/#!/autismoughtism
Thanks Anna, thanks too for all your other help and advice about Twitter, you’re a bit of a guru at this social media stuff! xxx
My eight-year-old son saw your picture and said, “ooooh! That family looks cute!”
Very sweet Holly, thank you for sharing that
Hi there,
I love your blog and honesty. Superb.
I am a PhD student at the University of Tasmania researching pain and empathy. I wonder if you and your readers would be interested in discussing children with autism and pain sensitivity? A prevailing belief is that children with autism have reduced sensitivity to pain. This belief is largely based on anecdotal observations and reports. Is it true?
This belief was investigated by Rami Nader and her colleagues in an experimental study. In this study, pain reactions to the invasive procedure of venepuncture were videotaped and compared in 21 children with autism (3–7 years old) and 22 children without autism. In addition, during venepuncture, parents gave reports of pain, and facial activity was used as an objective behavioral measure of pain.
Nader and her colleagues found that the children with autism showed a significant facial pain reaction in response to the venepuncture procedure. There was a lack of agreement between parental reports of pain and observed pain responses for the children with autism. Behavioral responses of the children with autism were generally similar to the children without autism. In fact, the significant facial pain reactivity found in the children with autism exceeded that shown by the non-autistic children. Parent reports of pain severity did not differ between the autism and non-autism groups. The degree of agreement between parental report and observed pain responses was consistently better for the non-autism group.
The authors drew the following conclusions:
(1) Children with autism can show a significant behavioral reaction in response to a painful stimulus, in contrast to the prevailing beliefs of pain insensitivity.
(2) Parental report may be inappropriate as an assessment tool for pain in children with autism.
The title of the paper is: ‘Expression of Pain in Children With Autism’, Clinical Journal of Pain, Volume 20, Number 2, 2004, pp. 88-97.
Many thanks for your time!
Simon van Rysewyk
Thanks simon, and yes that is a very interesting topic.
I haven’t written a post expressly on autism and pain reactions before, though I expect I have mentioned more than once that I’ve often found myself thinking my son is under-sensitive to his own pain. I bring it up when I take him to the doctors; they’ll inevitably ask him if x hurts, he’ll say no, I’ll step in and explain that he tends not to be aware of his own pain (I always mention it out of concern that they not dismiss potential symptoms). I can see that it’s very possible I’ve assumed too much in that area – misread my own son (unfortunately it wouldn’t be the first time; learning about autism is a long journey) – and I very much appreciate you pointing me in the direction of further reading and research into the issue. I look forward to correcting / enhancing my understanding, and hope to write a post on it soon.
Thanks again.
My first guess would be that autistic expression of pain might be like autistic laughing, which is reported to be more genuine. Speculative: if people are used to the social functions of crying, laughing, etc then their absence would be misleading. Children without autism know that ‘the squeaky wheel gets the oil’.
Hello =) I was wondering if you could remove Katie friends comment : ) I asked her if I could ask you to do that and she said yes : ) I hope that is ok !
That’s fine Matty, I’ll remove it for you and her
Hi There, we are thinking about having a child. It is clear from your blog that you have done a lot of research of the years and seem to be very clued up. We have cats. Have you ever found a link between cats and autism before?
Are there any things you would recommend before we start trying?
Thank you for your blog!! John
Hi John,
If you’re trying to avoid your child getting autism, there is a lot more misinformation than useful information out there. What I can tell you about are a few factors that apparently correspond with a higher liklihood of autism, but that doesn’t mean a causal link of course. Factors associated with higher risk are diseases (such as Rubella), drugs that can damage the fetus (like thalidomide), and high stress levels in the mother. Basically follow good practice for any pregnancy: Keep the mother happy and healthy!
As for cats, there are issues with toxoplasmosis that any woman must be careful about, so no changing the cat litter during the pregnancy! (http://www.pregnancycare.eu/pregnancy/other-harmful-toxins ). But no, I’m unaware of any correspondence or causative link between cats and autism.
I wish you and your partner all the best.
Thanks for your prompt reply. I really appreciate your response. Do you have any links which would be useful to help us read regarding getting pregnant and how to minimise chances of autism.
There are endless internet resources which will tell you an unlimited list of factors linked with autism through pregnancy. You can find them very easily via Google, but as I said, watch out for the loads of misinformation out there; stick to highly reputable scientific sites. There is no single web-page that I would personally recommend, not least of all because there is no definitive guide to avoiding your child becoming autistic, if such a thing is even possible: You’ve got to remember that autism has genetic components too, even the most “perfect” pregnancy with no complications could conceivably still result in an autistic child because of various strong genetic conditions (such as Fragile X). I have no easy answers for you because there are no easy answers. There is still far too much that is unknown about autism at this time, though there are a lot of very talented scientists around the world trying to remedy that.
Hello! We would like to extend a subscription to Footsteps2Brilliance’s, Inc. curriculum for you and your son. We recently received a beautiful letter from a mom with an autistic son and I thought you might like to read how our e-book collection has been of benefit to this little boy. Here is the link to the letter for you to read. http://tinyurl.com/8azylet
If you too find our curriculum beneficial would you be interested in reviewing our Academic Language Program on your blog?
Kindest Regards,
Cheryl
I your article on the happy dance and stimming. You posted a link that is no longer available but I was very interested in reading it and wondered if you had a copy our anything you could post? Thanks
Hi Melissa. Thanks for letting me know about the broken link, unfortunately I don’t have a replacement link for that wonderful piece on the nature of stimming. Sorry.
Dear Linda,
You’re in the running for Babble’s top 30 autism blogs of 2013! To help us speed up the process while we finalize the list, could you send us a high-res photo of you for potential use on our site? You can send it directly to me at your earliest convenience this week.
Thanks in advance for your help!
–
Erin Lebar
Babble.com | Disney Interactive Media Group
520 Broadway, 9th Floor
New York, NY 10012
That’s fantastic, thank you Erin, happy to be even be considered for this! I’ll look into getting a photo out to you before the end of the week